Role Summary

The Patient Engagement Manager position is a contract part-time opportunity for an individual to impactfully contribute to ensuring that the patient voice is incorporated into Lexeo program development and key initiatives.  Areas of focus include Friedreich ataxia cardiomyopathy (FA-CM) and Plakophilin-2 arrhythmogenic cardiomyopathy (PKP2-ACM) programs. We seek candidates with the desire to make a difference for patient communities and to contribute cross-functionally across Lexeo.  

As a member of the Medical Affairs team, this key role serves as a liaison among patients, families, advocates, the community, and Lexeo. The Patient Engagement Manager supports Lexeo’s role as a trusted partner to rare disease communities and leader in cutting-edge science by identifying unmet needs in patient communities, developing patient materials and external communications, and by representing Lexeo at patient community events.   

This individual will be part of a team shaping the therapeutic area landscape for gene therapy launch readiness and joining Lexeo during an expansion phase and an exciting time, offering an opportunity for professional development and advancement.  

Desired Candidate Profile

In addition to the required qualifications listed below for this role, we are seeking a team member who is highly motivated and compassionate with a proactive approach to their work. An individual who thinks outside the box, is solution-driven, open and adaptable to change, and wants to meaningfully contribute to shaping Patient Engagement at Lexeo will thrive in this role! 

We are currently seeking part-time support up to 25 hours per week, with the ability to eventually increase to 40 hours per week.

If this sounds like you, we welcome you to apply!

An individual located in the Eastern time zone or willing to work Eastern time zone hours is preferred. Travel will be required to attend congresses and meetings pertinent to the role and to the NYHQ Lexeo office as necessary.